top of page

Registry Committee

Private·6 members


Registry objectives

  • Design of CRFs

    • Meet with Industry pre-meeting to discuss data elements that would be useful for their research

  • Data management plan/workflow (entry, access, maintenance)

  • Protocol for transfer of genetic data from Blueprint (discussion with Ariana/Blueprint)

  • Protocol for interface with provider and patient entered data

  • Anticipated annual budget to facilitate the above goals

  • End goal: Have a “finished” product to be submitted to Vanderbilt Quantitative Sciences for REDCap development

  • Future goals

    • Test REDCap registry and iterative data entry plan

    • Development of manual of operations


  • Private

    Only approved members can view this group.

  • Visible

    Shown to site visitors.

  • August 20, 2022


  • Evelyn Argirokastritis
bottom of page